Author: rightsandwhiskers

  • No Kings, No Masters

    Yesterday, I had the pleasure of participating in the 2025 NO KINGS Protest. Eugene, OR had thousands of people. This is just the beginning but we made history.

    NO KINGS NO MASTERS

    Impeach Trump

  • A Conversation with Grief Part 4

    Me: I’ve been thinking about something lately regarding the way I process my grief. The initial stab, besides the obvious, seems to come from the change in routine. Here is what I mean. My mom texted and/or called me every single day and often multiple times. Now my phone barely goes off from personal messages outside of my husband. I spent my 40th birthday mostly alone and wishing my mom could call me or text me. I never knew just how big of a hole her death would leave in my heart. I mean, I did, but holy shit. I always said that when she died, I would lose it completely. I, in fact, did lose it completely for about a year or so. I am finally just starting to feel like myself again and like I can breathe again. They say the harder you love, the harder you grieve.

    I spent the first several months confused. I am still confused about what happened exactly. Was my mom trying to get up and she fell; the lack of oxygen led to a heart attack? Did her oxygen come off while sleeping? Did they find her dead or were they trying to get help and she died? I have no answers to these questions. I have been grappling with asking for records from the facility and case management entity. Is it worth it? It won’t bring her back. However, I can’t handle injustice, and I can’t seem to move on from this thought. My Mom was screwed over and mistreated so many times by so many people. I want revenge. I want them to have consequences. Mostly, I want them to understand and change their thinking and catch up with the rest of us “woke” people. When I think about my mom this is what comes to my mind, and it won’t stop. That could be a sign, or it could just be the way my brain works.

    I’m tired of being angry on behalf of my mom and the burden that has been part of my existence. I think I need some answers to move on, and I want to remember happy times and not just the trauma. Even with death, I need to know why.

    Grief was busy for this one.

  • Mom, You Raise Me Up

    Mom, You Raise Me Up

    One of the songs that I played at my mom’s funeral was “You Raise Me Up”. The song really tells all about how much my mom meant to me and how she treated everyone around her. It’s not fair that she had to go through so much shit in life. Despite her mental health struggles, disability, and developing dementia – she was an amazing human being. I could write an entire book just about my mom. I hope to do so, her story needs to be heard. The picture above is the last photo we took together before she passed away on 04/02/2024. I tried to be a voice for my Mom, but it was a constant fight. Our system has to do better in Oregon.

    Lyrics “You Raise Me Up”

    When I am down and, oh, my soul, so weary
    When troubles come and my heart burdened be
    Then I am still and wait here in the silence
    Until You come and sit awhile with me

    You raise me up so I can stand on mountains
    You raise me up to walk on stormy seas
    I am strong when I am on Your shoulders
    You raise me up to more than I can be

    You raise me up so I can stand on mountains
    You raise me up to walk on stormy seas
    I am strong when I am on Your shoulders
    You raise me up to more than I can be

    You raise me up (up) so I can stand on mountains (stand on mountains)
    You raise me up to walk on stormy seas (stormy seas)
    I am strong (I am strong) when I am on Your shoulders (ooh)
    You raise me up to more than I can be

    You raise me up (up) so I can stand on mountains (stand on mountains)
    You raise me up to walk on stormy seas (stormy seas)
    I am strong when I am on Your shoulders
    You raise me up to more than I can be

    You raise me up to more than I can be

    Mom, I am doing everything I can to advocate for those that need help now and in the future.

     The stigma must end, and we must talk about mental health with openness and courage. Right now, it’s scary, but it’s more important than ever.

  • Autism Iceberg

    I came across this on Facebook and thought it was very relatable. There are a lot of strengths not mentioned here too. Having a strong sense of justice for everyone, an abundance of empathy, think outside the box, offer different perspectives, creative, and also unique just like all humans. Can you relate to any of these?

  • Pills…

    A picture of a tree with the letters LD
    A beautiful tree with red, orange, and black with a tree border. The logo has the initials LD

    I wrote this many years ago for a creative writing class in college. Almost 20 years ago, in fact. Now I feel old. Anyway, this is about a time my Mom had a severe manic episode with psychosis. She was hospitalized for 14 days and she was never the same. She ended up getting a rare, but potentially fatal reaction to an anti-psychotic, called neuroleptic malignant syndrome. I often wonder if that contributed to early onset dementia in her 50’s. That’s pretty young. Between often being over medicated, or incorrectly? she had to sleep a lot when I was a kid. She also dealt with mania and depression even thought she was consistent about taking medication.

    When I was really young, maybe 3 or 4, my Mom had a severe manic episode and she took me in her bathrobe and walked down the street trying to get to my Grammy’s house. I am not sure if I remember or have formulated a memory from hearing about it.

    I do remember visiting my mom in a half-way house. This was a transition home before retuning to your own home, after being hospitalized.

    Here is the poem or short story…

    Pills to help her sleep. That’s all she needed. That’s what they told us. Pills to make her drowsy so she will sleep through the night.

    “Once she gets a good night sleep, she will be fine,” the doctor said.

    He didn’t know anything. He didn’t have to watch her shake herself into a seizure. He didn’t have to tell her everything was going to be okay when it clearly wasn’t. Just a good night sleep. How does one sleep when they shake like 37 shivers running through their bones all at once? He doesn’t have to look into the face covered with anxiety. Covered with fear. I am the one who has to see that face. And I can barely stand to look. I want to hold her arms and keep them from shaking. I want to make it stop. Do everything to be back to normal. A concept I don’t quite understand anymore. I sat there and watched. Completely helpless. It doesn’t seem real but exaggerated.

    I look at the papers. The ones that come in the bag for each pill bottle. There are so many. In 5-minutes, I know more than the doctor.

    It is very serious.

    Not something chased away by a nights rest. These side effects are rare. But they are serious. And she has them.

    There’s a spot for every day of the week. Sunday through Saturday. Four different times each day of the week. So many pills to keep track of.  I was no pharmacist. I didn’t know what I was getting myself into. I focused my energy on it. Day after day. Four different times. Overnight I became a full-time nurse.

    It was one of these pills that caused it all. The uncontrollable shaking. The pills made her so drowsy I had to stop her from falling asleep in her dinner. She lived like a zombie. I woke her up to take more pills. Ironic. To be woken up to take sleeping pills.

    This was the alternative. The other end of the ultimate high. Mania, they call it. This was the other end of the spectrum. There was no middle ground. I lived with the high and I lived with the low. I have been there and back. Been the hero and the enemy.

  • AuDHD and Change

    Four season tree, photo manipulation, magical, nature

    Have you ever seen a child or adult with autism stand at the door with their bags packed even though it might be hours or days before the trip is happening?

    Here is how that translates into adulthood with AuDHD. My logical brain knows that we are moving in the middle of July. However, my emotional brain kicks in combined with executive functioning differences. So, I have nights like tonight where I am struggling to get to sleep because I am ready to pack my bags and boxes and put them by the front door, so everyone knows I am ready to move. It’s hilarious and sad at the same time because trauma plays into this a lot, but the humor comes from how silly it can seem from the outside.

    My brain is ready to close one chapter and start another. While my logical brain says ok slow down, we have to plan and do tasks to get there. My emotional brain says this situation has been traumatic and I want to leave it behind.

    When I was a kid and I was excited about someone coming to visit, I would stand with my face against the glass waiting for them to turn around the corner into the cul-de-sac I lived in, and if the plan changed, I was devastated, and my day was ruined.

    Some of our “behaviors” can seem strange or concerning to people because they don’t understand the reason for it, but that can lead to a lot of stigma. If you are human, you have “behaviors”. That is normal. When you have a disability these “behaviors” suddenly get labeled as difficult or unusual. When humans have “behaviors” they are communicating a need that isn’t being met. For people who don’t use words to communicate this becomes dangerous. If you would like to see how dangerous, I encourage you to watch the documentary “This is Not about Me” by Jordyn Zimmerman.

    We need to remember that if it harms nobody then let people be- stop judging and worry about your own life. If you have time for judgment, then you need to get a life or use that time productively.

    Final thoughts- I have been thinking about the 10 Principles of Disability Justice today and how important they are now more than ever. Really it should just be a guide on how to be the best human possible. Here they are from the Sins Invalid website:

    1. INTERSECTIONALITY “We do not live single issue lives” –Audre Lorde. Ableism, coupled with white supremacy, supported by capitalism, underscored by heteropatriarchy, has rendered the vast majority of the world “invalid.”
    2. LEADERSHIP OF THOSE MOST IMPACTED “We are led by those who most know these systems.” –Aurora Levins Morales
    3. ANTI-CAPITALIST POLITIC In an economy that sees land and humans as components of profit, we are anti-capitalist by the nature of having non-conforming body/minds.
    4. COMMITMENT TO CROSS-MOVEMENT ORGANIZING Shifting how social justice movements understand disability and contextualize ableism, disability justice lends itself to politics of alliance.
    5. RECOGNIZING WHOLENESS People have inherent worth outside of commodity relations and capitalist notions of productivity. Each person is full of history and life experience.
    6. SUSTAINABILITY We pace ourselves, individually and collectively, to be sustained long term. Our embodied experiences guide us toward ongoing justice and liberation.
    7. COMMITMENT TO CROSS-DISABILITY SOLIDARITY We honor the insights and participation of all of our community members, knowing that isolation undermines collective liberation.
    8. INTERDEPENDENCE We meet each others’ needs as we build toward liberation, knowing that state solutions inevitably extend into further control over lives.
    9. COLLECTIVE ACCESS As brown, black and queer-bodied disabled people we bring flexibility and creative nuance that go beyond able-bodied/minded normativity, to be in community with each other.
    10. COLLECTIVE LIBERATION No body or mind can be left behind – only moving together can we accomplish the revolution we require.

    My personal thoughts on anti-capitalism are that it’s based on how capitalism has and continues to work in the US. It’s important to note that we don’t practice true capitalism in the US. That is a bigger and different conversation, but I agree with the anti-capitalist sentiment in relation to the social model of disability and the disability justice movement. My good friend reminded me of this today, in fact.

    Regardless of any of this- human rights matter and we need to work together to achieve equity. Equity harms nobody! Nothing About Us Without Us 🫶

  • Mental Health First Aid

    Mental Health First Aid

    Use code MHFA50 to get 50% off our training in July!

    Mental Health First Aid-Adult

    $175

    July 16 @ 9:00 am – July 17 @ 12:30 pm

    Instructor(s): Lindsay Dutton & Jennie Heidrick

    Adult Mental Health First Aid consists of self-paced learning by completing modules 1-9 on Mental Health First Aid Connect, followed by 6.5 hours of instructor-led training. Mental Health First Aid is an early intervention public education program. It teaches adults how to recognize the signs and symptoms that suggest a potential mental health challenge, how to listen non-judgmentally and give reassurance to a person who may be experiencing a mental health challenge, and how to refer a person to appropriate professional support and services.

    Participants will be able to:

    •Describe the purpose of Mental Health First Aid and the role of the Mental Health First Aider.
    •Identify the impact of mental health challenges on the well-being of adults in the U.S.
    •Explain that recovery from a mental health challenge is possible.
    •Describe the principles of safety and privacy for both the Mental Health First Aider and the person receiving first aid.
    •Explain the 5 steps of the Mental Health First Aid Action Plan (ALGEE).
    •Recognize the signs and symptoms of mental health challenges that may impact adults.
    •Evaluate the impact of early intervention on mental health challenges.
    •Apply the appropriate steps of the Mental Health First Aid Action Plan (ALGEE) when:
         -a person shows early signs of a mental health challenge.
         -a person shows worsening signs of a mental health challenge
    -in crisis situations.
    •Choose appropriate methods for self-care following the application of Mental Health First Aid in a crisis or non-crisis situation

  • Human Rights Book Recommendations

    Human Rights Book Recommendations

    The books listed below touch on disability, race, queer identity, and human rights in general. These are my favorites thus far…

    • How the Word is Passed by Clint Smith
    • Disability Visibility edited by Alice Wong
    • Brilliant Imperfection by Eli Clair
    • Black Disability Politics by Sami Schalk
    • A Disability History of the United States by Kim E Nielsen
    • Golem Girl by Riva Lehrer
    • I Know Why the Caged Bird Sings by Maya Angelou
    • Year of the Tiger by Alice Wong
    • The Autobiography of Malcolm X
    • Disability is Human by Stephanie W. Cawthon
    • The Street by Ann Petry
    • The Canary Code by Ludmila Praslova
    • The Revised Fundamentals of Caregiving by Jonathan Evison

    What are your favorites and what recommendations do you have? Post in the comments below!